My Visit to the National Institutes of Health and What to Expect

I saw Dr. Mark Hallett and his team at The National Institutes of Health (NIH) in the department of National Institute of Neurological Disorders and Stroke (NINDS) in early 2017. It was there that I was finally diagnosed with functional paroxysmal dystonia instead of “stress/psychosomatic.” Functional paroxysmal dystonia falls under the Functional Neurological Disorder (FND) …

work from home jobs, remote jobs, remote work, telecommute jobs, working with chronic illness, managing chronic illness, telework jobs

The Ultimate List of Remote/Work from Home Job Boards

Here’s the ultimate list of remote/work from home job boards and websites geared towards helping people find work from home. When I first started looking for work from home opportunities, I couldn’t find much that seemed legit. Ultimately I ended going the entrepreneurial route. Since then I’ve stumbled across legitimate work from home/remote job sites, …

9 Practices to Embrace a Positive Mindset while Living with Chronic Illness

I was recently asked how I stay positive while living with a chronic illness. It’s definitely been a work in progress, for sure. Chronic illness can be, so life-changing, and I try not to think too much about what has been taken away from me because it can feel soul-crushing and utterly depressing. I’m tearing …

Chronic illness | invisible illness | brain fog | brain fog at work | working with a chronic illness

What it Feels Like to Work with Brain Fog and What You Can Do About it

Brain fog! Arrgh! Brain fog is probably one of my most frustrating and debilitating symptoms. It can cause forgetfulness, confusion, stupidity, and the inability to think or concentrate. It also can cause brain fatigue which can trigger my other symptoms such as difficulty with speech, sensory overload, physical fatigue, pain in my brain and spinal …

bored of TV | things to do without TV | things to do when you have a chronic illness | chronic illness activities | chronic illness | activities to do with chronic illness | couch potato

39 Things to Do Instead of Watching TV When You Have a Chronic Illness

I know all too well how easy it is to become a professional couch potato when you have a chronic illness. And sometimes that is literally all you’re capable of doing. But other times we may be doing it out of habit, and it can get boring at times. Here are some other fun alternatives …

Functional Neurological Disorder | Functional Movement Disorder | FMD | FND | FND Research

More Proof that Functional Movement Disorders are Real and NOT “All in Our Head”

You have no idea how excited I am to share this news! There’s further evidence that shows Functional Movement Disorder (FMD), a subset of Functional Neurological Disorder, is very much real. Studies have now shown FMD has a biological aspect, and there are functional and structural changes in the brain. This means that FMD is …

holidays with chronic illness | chronic illness | invisible illness | gratitude | self-care

Surviving the Holidays When You Have a Chronic Illness

I don’t know about you but I can easily get carried away by the holiday season and overdo it. With the shopping, mailing cards, meal prep, decorating, wrapping presents, family gatherings, and holiday parties, it can take a lot out of you even if you’re well. I am feeling the fatigue just looking at that …

Working with a Chronic Illness | Mistakes made working with Chronic Illness | Life with Chronic Illness | Learning to Live with a chronic illness

7 Mistakes I Made While Working with a Chronic Illness

I’ve been living and working with a chronic illness since August 2010. It hasn’t always been easy, and I’ve learned a lot along the way. The biggest lessons I learned happened when I relapsed after a three-year remission. My relapse started while I was on maternity leave, but I didn’t realize anything was wrong until …

Working with a Chronic Illness | Family Medical Leave Act | FMLA | State FMLA | Americans with Disabilities Act | ADA Accommodations | Short Term Disability | Long Term Disability | Employee Expectations Chronic Illness | Tell your boss about chronic illness | HR confidentiality chronic illness

Working with a Chronic Illness? Here are 8 Things You Should Know

When I entered the corporate workforce at age 22, I was a healthy able bodied individual who worked hard for my money. Then at 28 I became very ill with a condition that took me six and a half years to get a diagnosis. In the meantime, I was still trying to work as hard …