My Visit to the National Institutes of Health and What to Expect

I saw Dr. Mark Hallett and his team at The National Institutes of Health (NIH) in the department of National Institute of Neurological Disorders and Stroke (NINDS) in early 2017. It was there that I was finally diagnosed with functional paroxysmal dystonia instead of “stress/psychosomatic.” Functional paroxysmal dystonia falls under the Functional Neurological Disorder (FND) …

bored of TV | things to do without TV | things to do when you have a chronic illness | chronic illness activities | chronic illness | activities to do with chronic illness | couch potato

39 Things to Do Instead of Watching TV When You Have a Chronic Illness

I know all too well how easy it is to become a professional couch potato when you have a chronic illness. And sometimes that is literally all you’re capable of doing. But other times we may be doing it out of habit, and it can get boring at times. Here are some other fun alternatives …

holidays with chronic illness | chronic illness | invisible illness | gratitude | self-care

Surviving the Holidays When You Have a Chronic Illness

I don’t know about you, but I can easily get carried away by the holiday season and overdo it. With the shopping, mailing cards, meal prep, decorating, wrapping presents, family gatherings, and holiday parties, it can take a lot out of you even if you’re well. I am feeling the fatigue just looking at that …