Notepad with pen on top, yellow flowers and a cup of coffee next to them.

Yes, You Can and Should Still Have Goals When You’re Chronically Ill

Yes, you can and should still have goals when you’re chronically ill. Why might you ask? You may be thinking, “I can’t do what I used to be able to do.”   While that may be true, I think it’s important to set reasonable and realistic goals for ourselves that are outside of getting a diagnosis …

a board with lettering that says, "One day at a time." Surrounded by decorative items such as tea cup with tea and a notebook

A Decade of Chronic Illness: Life Lessons Learned

In December of 2019, I attended an event where they spoke about 2020 goals. I was all for learning different strategies to help me come up with some fantastic goals. But then the speaker said, “Before you tackle your goals, take time to reflect on every year from this past decade.”  I thought back to …

My Visit to the National Institutes of Health and What to Expect

I saw Dr. Mark Hallett and his team at The National Institutes of Health (NIH) in the department of National Institute of Neurological Disorders and Stroke (NINDS) in early 2017. It was there that I was finally diagnosed with functional paroxysmal dystonia instead of “stress/psychosomatic.” Functional paroxysmal dystonia falls under the Functional Neurological Disorder (FND) …

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39 Things to Do Instead of Watching TV When You Have a Chronic Illness

I know all too well how easy it is to become a professional couch potato when you have a chronic illness. And sometimes that is literally all you’re capable of doing. But other times we may be doing it out of habit, and it can get boring at times. Here are some other fun alternatives …

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Surviving the Holidays When You Have a Chronic Illness

I don’t know about you, but I can easily get carried away by the holiday season and overdo it. With the shopping, mailing cards, meal prep, decorating, wrapping presents, family gatherings, and holiday parties, it can take a lot out of you even if you’re well. I am feeling the fatigue just looking at that …